autistic people
RFK Jr. Has Packed an Autism Panel With Cranks and Conspiracy Theorists
Among those Robert F. Kennedy Jr. recently named to a federal autism committee are people who tout dangerous treatments and say vaccine manufacturers are "poisoning children." US health secretary Robert F. Kennedy Jr. has filled an autism committee with friends, associates, and former colleagues who believe that autism is caused by vaccines. Autism advocates are now worried the group could pave the way for dangerous pseudoscientific treatments going mainstream. Last week, Kennedy announced an entirely new lineup for the Interagency Autism Coordinating Committee (IACC), a group that recommends what types of autism research the government should fund and provides guidance on the services the autism community requires. The group is typically composed of experts in the area of autism research, along with policy experts and autistic people advocating for their own community.
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- Health & Medicine > Therapeutic Area > Neurology > Autism (1.00)
- Health & Medicine > Therapeutic Area > Genetic Disease (1.00)
What if the idea of the autism spectrum is completely wrong?
What if the idea of the autism spectrum is completely wrong? For years, we've thought of autism as lying on a spectrum, but emerging evidence suggests that it comes in several distinct types. These three words have become synonymous with autism, yet behind them lies a common misunderstanding. The idea of "the spectrum" suggests that all autistic people share similar experiences and behave in similar ways - only to a greater or lesser extent. The reality couldn't be further from the truth. Some autistic people may not speak at all; others are hyperverbal and extremely fluent.
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"I Hadn't Thought About That": Creators of Human-like AI Weigh in on Ethics And Neurodivergence
Rizvi, Naba, Smith, Taggert, Vidyala, Tanvi, Bolds, Mya, Strickland, Harper, Begel, Andrew, Williams, Rua, Munyaka, Imani
Human-like AI agents such as robots and chatbots are becoming increasingly popular, but they present a variety of ethical concerns. The first concern is in how we define humanness, and how our definition impacts communities historically dehumanized by scientific research. Autistic people in particular have been dehumanized by being compared to robots, making it even more important to ensure this marginalization is not reproduced by AI that may promote neuronormative social behaviors. Second, the ubiquitous use of these agents raises concerns surrounding model biases and accessibility. In our work, we investigate the experiences of the people who build and design these technologies to gain insights into their understanding and acceptance of neurodivergence, and the challenges in making their work more accessible to users with diverse needs. Even though neurodivergent individuals are often marginalized for their unique communication styles, nearly all participants overlooked the conclusions their end-users and other AI system makers may draw about communication norms from the implementation and interpretation of humanness applied in participants' work. This highlights a major gap in their broader ethical considerations, compounded by some participants' neuronormative assumptions about the behaviors and traits that distinguish "humans" from "bots" and the replication of these assumptions in their work. We examine the impact this may have on autism inclusion in society and provide recommendations for additional systemic changes towards more ethical research directions.
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- Health & Medicine > Therapeutic Area > Neurology > Autism (0.76)
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Beyond Keywords: Evaluating Large Language Model Classification of Nuanced Ableism
Rizvi, Naba, Strickland, Harper, Ahmedi, Saleha, Kallepalli, Aekta, Khirwadkar, Isha, Wu, William, Munyaka, Imani N. S., Ousidhoum, Nedjma
Large language models (LLMs) are increasingly used in decision-making tasks like résumé screening and content moderation, giving them the power to amplify or suppress certain perspectives. While previous research has identified disability-related biases in LLMs, little is known about how they conceptualize ableism or detect it in text. We evaluate the ability of four LLMs to identify nuanced ableism directed at autistic individuals. We examine the gap between their understanding of relevant terminology and their effectiveness in recognizing ableist content in context. Our results reveal that LLMs can identify autism-related language but often miss harmful or offensive connotations. Further, we conduct a qualitative comparison of human and LLM explanations. We find that LLMs tend to rely on surface-level keyword matching, leading to context misinterpretations, in contrast to human annotators who consider context, speaker identity, and potential impact. On the other hand, both LLMs and humans agree on the annotation scheme, suggesting that a binary classification is adequate for evaluating LLM performance, which is consistent with findings from prior studies involving human annotators.
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RFK Jr. Knows Amazingly Little About Autism
Health and Human Services Secretary Robert F. Kennedy Jr. conducts a news conference to discuss the Centers for Disease Control and Prevention's latest Autism and Developmental Disabilities Monitoring Network survey.Tom Williams/CQ Roll Call/AP While his anti-vaccine allies swooned and scientists cringed, HHS Secretary Robert F. Kennedy Jr. used his first-ever press conference this week, in response to new data showing an apparent increase in the number of autistic kids, to promote a variety of debunked, half-true, and deeply ableist ideas about autism. He painted the condition as a terrifying "disease" that "destroys," as he put it, children and their families. Kennedy made it clear he planned to use his powerful role as the person in charge of a massive federal agency devoted to protecting public health to promote the idea that autism is caused by "environmental factors," a still-speculative thesis that's clearly a short walk towards advancing his real aim: blaming vaccines. Kennedy has spent the last 20 years promoting anti-vaccine rhetoric, falsely and repeatedly claiming that vaccines are linked to autism. Yet as the press conference made clear, Kennedy knows startlingly little about autism.
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- Health & Medicine > Therapeutic Area > Neurology > Autism (1.00)
- Health & Medicine > Therapeutic Area > Genetic Disease (1.00)
A revolutionary new understanding of autism in girls
In China, it is known as "the lonely disease". The Japanese term translates as "intentionally shut". Across the world, there is a perception of autistic people as aloof, socially awkward and isolated, seeming to not only lack the kind of automatic social instinct that enables successful interaction, but also the desire to achieve it. There is also a perception that autistic people tend to be men. For decades, researchers – myself included – have thought of autism as a predominantly male condition.
AUTALIC: A Dataset for Anti-AUTistic Ableist Language In Context
Rizvi, Naba, Strickland, Harper, Gitelman, Daniel, Cooper, Tristan, Morales-Flores, Alexis, Golden, Michael, Kallepalli, Aekta, Alurkar, Akshat, Owens, Haaset, Ahmedi, Saleha, Khirwadkar, Isha, Munyaka, Imani, Ousidhoum, Nedjma
As our understanding of autism and ableism continues to increase, so does our understanding of ableist language towards autistic people. Such language poses a significant challenge in NLP research due to its subtle and context-dependent nature. Yet, detecting anti-autistic ableist language remains underexplored, with existing NLP tools often failing to capture its nuanced expressions. We present AUTALIC, the first benchmark dataset dedicated to the detection of anti-autistic ableist language in context, addressing a significant gap in the field. The dataset comprises 2,400 autism-related sentences collected from Reddit, accompanied by surrounding context, and is annotated by trained experts with backgrounds in neurodiversity. Our comprehensive evaluation reveals that current language models, including state-of-the-art LLMs, struggle to reliably identify anti-autistic ableism and align with human judgments, underscoring their limitations in this domain. We publicly release AUTALIC along with the individual annotations which serve as a valuable resource to researchers working on ableism, neurodiversity, and also studying disagreements in annotation tasks. This dataset serves as a crucial step towards developing more inclusive and context-aware NLP systems that better reflect diverse perspectives.
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Visual Stereotypes of Autism Spectrum in DALL-E, Stable Diffusion, SDXL, and Midjourney
Wodziński, Maciej, Rządeczka, Marcin, Szuła, Anastazja, Sokół, Marta, Moskalewicz, Marcin
Avoiding systemic discrimination requires investigating AI models' potential to propagate stereotypes resulting from the inherent biases of training datasets. Our study investigated how text-to-image models unintentionally perpetuate non-rational beliefs regarding autism. The research protocol involved generating images based on 53 prompts aimed at visualizing concrete objects and abstract concepts related to autism across four models: DALL-E, Stable Diffusion, SDXL, and Midjourney (N=249). Expert assessment of results was performed via a framework of 10 deductive codes representing common stereotypes contested by the community regarding their presence and spatial intensity, quantified on ordinal scales and subject to statistical analysis of inter-rater reliability and size effects. The models frequently utilised controversial themes and symbols which were unevenly distributed, however, with striking homogeneity in terms of skin colour, gender, and age, with autistic individuals portrayed as engaged in solitary activities, interacting with objects rather than people, and displaying stereotypical emotional expressions such as pale, anger, or sad. Secondly we observed representational insensitivity regarding autism images despite directional prompting aimed at falsifying the above results. Additionally, DALL-E explicitly denied perpetuating stereotypes. We interpret this as ANNs mirroring the human cognitive architecture regarding the discrepancy between background and reflective knowledge, as justified by our previous research on autism-related stereotypes in humans.
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Love, Joy, and Autism Robots: A Metareview and Provocatype
Hundt, Andrew, Ohlson, Gabrielle, Wolfert, Pieter, Miranda, Lux, Zhu, Sophia, Winkle, Katie
Previous work has observed how Neurodivergence is often harmfully pathologized in Human-Computer Interaction (HCI) and Human-Robot interaction (HRI) research. We conduct a review of autism robot reviews and find the dominant research direction is Autistic people's second to lowest (24 of 25) research priority: interventions and treatments purporting to 'help' neurodivergent individuals to conform to neurotypical social norms, become better behaved, improve social and emotional skills, and otherwise 'fix' us -- rarely prioritizing the internal experiences that might lead to such differences. Furthermore, a growing body of evidence indicates many of the most popular current approaches risk inflicting lasting trauma and damage on Autistic people. We draw on the principles and findings of the latest Autism research, Feminist HRI, and Robotics to imagine a role reversal, analyze the implications, then conclude with actionable guidance on Autistic-led scientific methods and research directions.
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For Some Autistic People, ChatGPT Is a Lifeline
Like many autistic people, Madi Young, a consultant in Seattle, has learned to perform the social behaviors and body language that neurotypical people expect. But masking, as it's called, is hard work and can lead to misunderstandings. So Young was pleased to recently find a conversational partner whom they feel more closely mirrors the way they speak: ChatGPT. "It's not getting the mismatch with my body language--it's only getting my words," says Young, who uses the chatbot for therapeutic conversations and as a "brainstorming buddy" or "friend." Young also uses the chatbot to help them in their work with neurodivergent entrepreneurs and creatives on brand and business strategy.